CURRENT PROJECTS

Here’s what we’re focusing on for the first half of 2020. We’re a small volunteer team so we can’t do all we’d like to. If there’s something you want to draw our attention to please get in touch.

HIQA PUBLIC CONSULTATION

September 2020: Submission on HIQA's draft recommendations for a National Electronic Patient Summary

In August 2020 the Health Information and Quality Authority published its Recommendations on the Implementation of a National Electronic Patient Summary in Ireland and invited public submissions.

We were concerned to see that scant consideration had been given to data subject rights and data protection more broadly. We made a submission which you can read here (direct link to PDF).

Complete

LIAISING WITH THE DATA PROTECTION COMMISSION

January 2020: Submission on regulatory strategy
Complete

In December 2019 the Data Protection Commission put out a call for submissions to help shape its regulatory strategy for the years 2020 to 2025.

We made a submission which you can read here (direct link to PDF).

INFORMATION FOR INDIVIDUALS

Always Ongoing

We operate the datasubject.ie website which aims to provide understandable, jargon-free information about data protection rights for individuals. We’ll be constantly adding to this over time so that it becomes a valuable and valued resource for data subjects in Ireland.

RESEARCH

Processing of personal data by Irish political parties
Ongoing

We want to examine how compliant the basic data processing activities of Irish political parties are. We’d like to see whether they operate with the required levels of transparency and if they respond properly to data subjects attempting to exercise their right of access, among other things.

We may need a small number of volunteers to participate in this research – if you’d like to help then drop us an email.

OUTREACH

Ongoing

We’ll be getting in touch with other organisations in Ireland and across Europe who share our commitment to fundamental rights, especially in the area of data protection to see if there are projects we can work on together.

We’ll also be contacting journalists to introduce ourselves and tell them what we do, when appropriate.

March 2020: Guest piece in the Public Interest Law Alliance's Bulletin

The Public Interest Law Alliance is a project of the Free Legal Advice Centres (FLAC). They publish a Bulletin every fortnight. You can read our contribution to the 18th March edition here.

February 2020: IrishLegal.com coverage